We’re proud to announce that we’ve incorporated as Fight For Phoebe, Inc, and are now a 501(c)3 tax-exempt non-profit organization.
We want to continue to build upon the community’s support over the past two years and help raise awareness of histio and other orphan diseases.
As you’ve probably seen, our first event—actually continuing our momentum from last year—is the Fight for Phoebe Memorial Run to be held on October 8th. We’re also looking at other events and opportunities. Not only fundraisers, but also community outreach with Be The Match and other groups.
Proceeds from these events will be used to benefit the Matthew and Andrew Akin Foundation, Hospice of the Chesapeake, and other local organizations. We also hope to assist families in need, particularly those dealing with rare and orphan diseases such as hemophagocytic lymphohistiocytosis (HLH).
We'll continue to use this this webpage, as well as our Facebook Group Fight For Phoebe to keep people posted as to our events and outreach.
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