Our Story

In September of 2015 at Children's National Medical Center in Washington, D.C., Phoebe Jeong-Hui Ward was diagnosed with HLH (Hemophagocytic Lymphohistiocytosis). HLH is a rare and life threatening auto immune disorder.

Before becoming ill, Phoebe was an 8 year old girl who was adopted from South Korea at 8 months old. She was an active and vibrant 3rd grader who in Maryland who loved Tae Kwon Do, basketball, lacrosse, cheerleading and having fun! 

Phoebe passed away from HLH in February 2016 after more than 5 months in the hospital. Her final days were at home.

Phoebe's treatment included high dose steroids and chemotherapy, but a bone marrow transplant would have been necessary as part of her life-saving treatment.

To sign up to be a potential stem cell/marrow donor, join the Be The Match Registry today at: http://join.bethematch.org/FightForPhoebe or attend an event to register in person. Don't see an event close to you? PM us today to get an event started.

We thank all those who are willing to register to be a bone marrow donor. Each new person who registers continues Phoebe's legacy as well as all other people who are awaiting bone marrow transplants.

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