Education: Increasing community awareness of the disease and treatments, to include bone marrow transplantation, especially for minorities.
Research: Work with national groups to advance research into histio diseases.
About Us
Fight for Phoebe, Inc is a 501(c)(3) organization dedicated to helping local people and families with hemophagocytic lymphohistiocytosis (HLH) and other orphan diseases through:
Advocacy: Providing financial assistance through local providers and help families understand the diagnosis, treatment options, insuring that they and care providers understand their rights as patients.
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